Current Status of Factor Prophylaxis in the Hemophilia Population
Victor Blanchette, Canada
Factor Prophylaxis in Persons with Hemophilia and Inhibitors
Leonard Valentino, USA
When, If Ever & In Whom Should Factor Prophylaxis be Tailored/Stop
Kathelijn Fischer, The Netherlands

Inherited Platelet Disorders
Marco Cattaneo, Italy
FXIII Deficiency: Diagnosis and Treatment
Aida Inbal, Israel
Fibrinogen Deficiency: Diagnosis and Treatment in Hypo- and Disfibrinogenaemia
Philippe de Moerloose, Switzerland
State of the Aart of Rare Bleeding Disorder Database (RBDD)
Marta Speafico, Italy

The European Acquired Hemophilia registry (EACH2): a preliminary data analysis
Francesco Baudo, Italy
Multiplex Ligation-dependent Probe Amplification (MLPA) is a promising technology for carrier determination and prenatal diagnosis in Haemophilia A caused by exon deletion/duplication of the Factor VIII (F8) gene
Aygula Simsek, Australia
Recombinant Factor VIIa Enhances Thrombin Generation in Plasma of Severe Thrombocytopenic Patients
Michael Novak, Austria
Prolonged in vivo half-life of recombinant factor VIIa by fusion to albumin
Stefan Schulte, Germany
Human MHC-class II drives anti-FVIII immune responses in humanized HLA-DRB1*1501 hemophilic mice
Birget M. Reipert, Austria
The importance of maintaining FVIII trough levels above 1% during prophylactic treatment of hemophilia A; using license study databases to answer key medical questions
Kathleen Casey, USA
A Case of Hemophilia Successfully Treated with Auxiliary Partial Orthotopic Liver Transplantation
Hee-Jung Wang, Korea
Long-term impairments in children with haemophilia and a history of intracranial haemorrhage
Kate Kahair, United Kingdom
Anti-platelet antibodies in cases of Glanzmann’s thrombasthenia (GT) with and without history of platelet or red cell transfusion
Kanjaksha Ghosh, India

Overview of Acquired Haemophilia and UK Study
Peter Collins, United Kingdom
New Treatments for Acquired Hemophilia
Craig Kessler, USA
Acquired Von Willibrand Syndrome (AVWS)
Augusto Federici, Italy

New Risk Factors for Inhibitors
Jan Astermark, Sweden
Role of VWF in Inhibitor Development
Sebastien Lacroix, France
T Regulatory Cells in the Pathogenesis of Inhibitors
Mark Reding, USA

Overview
David Lillicrap, Canada
Coagulation Proteins with Enhanced Biological Properties
Steven Pipe, United Kingdom
Bringing Hemophilia Gene Therapy to the Clinic
Katherine High, USA
Engineered Liver Cells for theTreatment of Hemophilia
Kazuo Ohashi, Japan
Cell-based Strategies for Inherited Protein Deficiencies
Ali Ugur Ural, Turkey

Overview
Francesco Rodighiero, Italy
The Case of Von Willebrand Disease
Alberto Tosetto, Italy
The Case of Menorrhagia
Rezan Abdul Kadir, United Kingdom
The Case of Children 
Paula James, Canada

Long-Term Prognosis in Acquired Hemophilia:Ongoing Experience from the Quebec Reference Center for Inhibitors
Jean St-Louis, Canada
Enhanced Blood Clotting and Survival of Hemophilia A Mice Treated with Recombinant FVIII Formulated as a Non-covalent Complex with PEGylated Liposomes
Junliang Pan, USA
Quantizatation of Factor VIII: Antigen, Antibodies and vWF
Saulius Butenas, USA
Molecular characterization of human B domain-specific anti-factor VIII monoclonal antibodies generated in transgenic mice and prevalence of anti-B domain Abs in 90 hemophilia A patients
Geraldine Lavigne-Lissalde, France
Outcome of Liver Transplantation in Patients with Hemophilia: A Single-Center Experience
Annaadriana Zakarija, USA
Venous Thromboembolic complications in patients with severe coagulopathy undergoing major surgery
Sergio Sirgusa, Italy
Survival analysis of patients with haemophilia at the adult haemophilia care center in Vienna, Austria
Sylvia Reitter, Austria
A 10 -year Randomized, Clinical Trial on Prophylaxis vs On-Demand Treatment with Children with Hemophilia A, the E.S.P.R.I.T. STUDY
Alessandro Gringeri, Italy
The impaired thrombin generation in patients with Glanzmann thrombastenia can be corrected by recombinant factor VIIa (rFVIIa)
Tami Livat, Israel

Carriers, Counselling and Testing
Alison Street, Australia
Preimplantation Genetic Diagnosis of Haemophilia
Stuart Lavery, United Kingdom
Management of Delivery and Neonatal Period
Rolf Ljung, Sweden

Molecular Mechanisms of Mild/Moderate Hemophilia A
Steven Pipe, USA
Prevention and Treatment of Inhibitor Development in Mild/Moderate Hemophilia A
Roseline d'Orion, France
Anti-factor VIII Antibodies and Factor VIII Specific T Lymphocytes in Mild/Moderate Hemophilia A
Marc Jacquemin, Belgium

Enhancing Global Hemophilia Care through Professional Training
Keith Hoots, USA
The Impact of Surveillance Systems on Hemophilia Care
Mike Soucie, USA
European Association for Haemophilia and Allied Disorders
Christopher Ludlam, UK
Research in Hemophilia – Global Partnerships for Enhancing Care
Alok Srivastava, India

HIV/HCV Co-Infection in Hemophilia
Jorge Daruich, Argentina
The Natural and Unnatural History of Hepatitis C Virus Infection
Harvey Alter, USA
25 Years of HIV Research: What We Have Learned and What We Still Need to Know
Lucy Dorrell, UK
Variant Creutzfeldt-Jakob Disease: Transmission by Clotting Factor , Up-to-Date Review
James Ironside, UK

Aspects of Surgical Procedures in Early Infancy
Donna DiMichele, USA
Intracerebral Haemorrhages in Children with Focus on the Neonatal Period
Hérve Chambost, France
Venous Access – Why Such Diverse Experiences of Central Venous Lines
Ann Marie Stain, Canada

New Assays for Monitoring Hemophilia Treatment
Midori Shima, Japan
Diagnosis of FVIII Deficiency
Bert Verbuggen, The Netherlands
Diagnosis of Congenital & Aquired FXIII Deficiency
Steve Kitchen, UK

Treatment of Acquired von Willebrand Syndrome with von Willebrand Factor- Containing Concentrate
Andreas Tiede, Germany
New Pro-Drug Concept to Prolong the Survival of rFVIII in Hemophilia
Peter Turecek, Austria
A Case Control Study to Examine Treatment-Related Factors in the Development of Inhibitors in Hemophilia A
Peter MacLean, United Kingdom
Association of Bleeding in Hemophiliacs with Increased Plasminogen Activity
Andrea Gerhardt, Germany
Patients with Mild Hemophilia A and No Detectable FVIII Mutation Have Poorer Response to Desmopressin
Giancarlo Castaman, Italy
Joint Bleeds in Hemophilia A Mice: The Effect of rFVIII, rFVIIa and NN1731
Kirstine Øvlisen, Denmark
Prolonged Duration of Effect of GlycoPEGylated rFVIIa in a Venous Statis Model
Peter B. Johansen, Denmark
LowRate of Complications after Long-Term Use of Arterioenous Fistula in Children with Hemophilia
Elena Santigostina, Italy

Angiographic Embolisation
Eveline Mauser-Bunschoten, The Netherlands
MRI Imaging of Joints
Andrea Doria, Canada
Computerised X-Ray Scoring System for Hemophilia Arthropathy
Natalie Jansen , The Netherlands
Non-invasive Liver Imaging
Johannes Oldenburg, Germany

Type 1: Advances in Molecular Genetics
David Lillicrap, Canada
Type 2: Diagnostic and Management of VWD
Jenny Goudemand, France
Type 3: Historical Review and Contemporary Treatment Dilemmas
Erik Berntorp, Sweden

Prenatal Gender Determination from Maternal Plasma in the Management of Pregnant Carriers of Hemophilia
Nuria Nogues, Spain
Rational Design Approaches Towards a Longer-Acting Factor VIII for Hemophilia A Treatment
Haiyan Jiang, USA
Recombinant FIX Molecules with Enhanced Catalytic Activity
Rudolf Hartmann, Austria
Classification of Factor VIII Gene Mutations According to Risk of Inhibitor Formation
Rainer Schwaab, Germany
Survival and Co-Morbidities in Patients with Factor XII Deficiency
Wunna Swe, United Kingdom
Therapeutic Effects of Hepatocyte Transplantation on Hemophilia B
Kohei Tatsumi, Japan
Report on Ten New Patients with Congenital Factor X Deficiency and the Associated Mutations
Flora Peyvandi, Italy
The Diagnostic Challenge of Platelet-Type von Willebrand Disease: Data from the Canadian PT-VWD Project
Maha Othman, Canada
Intracellular Trafficking Analysis of C111Y and C111S Mutations of Factor IX Identified in Mexican Patients with Severe Hemophilia B
Johanna Mantilla Capacho, Mexico

Oral and General Health Related Quality of Life among Patients with Haemophilia A
Esra Alpkillic Baskirt , Turkey
Treatment for Haemophilia Patients undergoing Dental Procedures
Carmel Egan, Ireland
Periodontal Care and Post Surgery Bleeding in Patients with Hemophilia
Eduardo Rey, Argentina
Pseudotumour of the Orofacial Region in Children with Blood Dyscrasias
Noraini Yunus, Malaysia

The Use of Minimal Factor Infusion in Oral Surgery
Ian Hewson, Australia (invited speaker)
The Use of Chitosan Local Hemostatic Agent after Dental Extration in Patients with Bleeding Disorders - A New Option
Luiz Alberto Valente Soares, Brazil
Management of Dental Extractions by a Von Willibrand Factor Product (VWF) with a Low FVIII Content (Wilfactin) in Von Willibrand Disease Patients
Annie Borel Derlon, France
The Use of Fibrin Selant as an Hemostatic Agent after Dental Sugery: Review of 122 Teeth Extractions
Luiz Alberto Valente Soares, Brazil
The Frequency of Bleeding Problems following Dental Surgeryin Adults with Inherited Bleeding Disorders
Karen Gordon, UK
Dental Extraction in Two Patients with Bernard Soulier Syndrome using Recombinant Factor VIIa (fVIIa, Novo Seven)
Andrea Gerhardt, Germany

Is the WFH/WHO Quality Assessment Scheme Having an Effect?
Steven Kitchen,UK
EQA Schemes in Developing Countries: Can Anyone Do It?
Alok Srivistava, India
Data on the EQA of Rare Bleeding Disorders
Ian Jennings, UK
How an EQA Genetic Scheme has Enhanced Laboratory Practice
Anne Goodeve , UK

Prevalence and Diagnosis of Haemorrhagic Disorders and an Evaluation of the Effectiveness of WFH Laboratory Training Workshops in Latin America
Arlette Ruiz Saez, Venezuela
Guidelines on Diagnosis of Rare Bleeding Disorders
Paula Boton-Maggs, UK
Platelet Function in the Laboratory and its Quality Control
Catherine Hayward, Canada
Minimal Requirements for Diagnosis of Bleeding Disorders in Developing Countries
Sukesh Nair, Inda

Dynamic Evaluation of the Clotting Process in Haemorrhagic Disorders
Benny Sorensen. Denmark
Laboratory Measurements for the Choice and Monitoring of Treatment in VWD
Giancarlo Cataman, Italy
Mild Haemophilia with Normal Results: Is it a Lab Phenomenon or a Local Issue?
John Lloyd, Australia
Novel Technology in Measurement of Primary Haemostasis: Are They of Help or are They Just Expensive Toys
David Varon, Israel

Functional Inhibitors to Factor VII:C in Patients Suffering Factor VII Deficiency: Results from a Multi National Screening Programme
Jorgen Ingerslev, Denmark
Genetics of Rare Bleeding Disorders
Flora Peyvandi, Italy
Laboratory Developments for Evaluating Gene Therapy
Simon Waddington, UK
Genetic Aspects of Inhibitor Development
Erik Berntorp, Sweden

Physical Fitness in Children with Hemophilia
Raoul Engelbert, Netherlands
The Role of Obesity in Physical Fitness
Danielle Douma, Netherlands
The Role of Illness Perception and Self-Efficacy in Physical Fitness
Annecke Hegeman, Netherlands
Physcial Fitness, Sports Participation and Advice
Jasper Köiter, Netherlands

Development of Fit as...a Multimedia Excercise Program
David Stephsen, United Kingdom

The Swedish Version of Hemophilia Activity List (HAL)The Role of Obesity in Physical Fitness
Elizabeth Brodin, Sweden

Radioisotope Synovectomy with Yttrium90 and Rhenium186 for Hemophilic Synovitis: 7 Years, 181 Patients, 209 Joints, 221 Applications; Izmir Experience
Kaan Kavakli, Turkey

Interobserver (IEOR) and Intraobserver (IAOR) Reliability Evaluation of Radiographic Scores Commonly Used for Hemophilic Arthropathy
Mauricio Silva, USA

World Federation of Hemophilia Congress 2006: A Template for Physiotherapy Treatment of Persons with Hemophilia
Sandra Squire, Canada

Treatment of Fixed Flexion Deformities of the Knee with Ilizarov Circular External Fixator in Hemophilic Patients
Fatih Dikici, Turkey

Bone Turnover Markers and Bone Mineral Density in Children with Hemophilia
J.A. Tlacuilo-Parra, Mexico

Physiotherapy Promotion in China: Development of Home Care Hemophilia Physiotherapy and Exercise Education Materials
Lixia Chen, China

Synoviorthesis: Results in Madrid
Carlos Rodriquez-Merchan, Spain
Revison TKA
Luigi Solimeno, Italy
Orthopedic Management of Hemophilia in Turkey
Omer Taser, Turkey
Global Physiotherapy Initiative: Results of Pilot
Piet De Kleijn, The Netherlands and Adly Sabbour, Eygpt

Hemophilia Versus Healthy, Age Matched Children: A Physics Based Model
Axel Seuser, Germany

Utility of a Combined Physiotherapy and Podiatry Clinic for Adults and Children with Hemophilia
Ann South, United Kingdom

The Canadian Hemophilia Prophylaxis Study Cohort: Musculoskeletal Status by Age
Pam Hilliard, Canada

Elbow Endoprosthesis in Hemophilic Arthropathy: 3 Case Reports
Peter Lages, Germany

Outcomes in Total Elbow Arthroplasty in Patients with Hemophilia at the University of California, San Francisco: A Retrospective Review
Melanie Marshall, USA

Ankle Prosthesis in Hemophilia
Jean-François Schved, France

Changing Patterns of Bleeding in Patients with Severe Hemophilia A
David Stephensen, United Kingdom

Despite Quick Clearance of Blood after a Hemarthrosis, Adverse Effects on Cartilage and Synovial Tissue are Initiated, Compromising the Joint
Natalie Jansen, The Netherlands

Clinical History and Diagnosis
Mauricio Silva, USA
Arthroscopic Debridement: Pros and Cons
Gianluigi Pasta, Italy and Carlos Rodriquez-Merchan, Spain
Fusion: Pros and Cons
Javed Mortazavi, Iran
Arthroplasty: Pros and Cons
Luigi Solimeno, Italy and Michael Heim, Israel

Yttrium 90 –Hydroxyapatite: A New Radioisotope for Chronic Synovitis in Hemophilia
Sylvia Thomas, Brazil

The Effect of Intra-Articular Sodium Hyaluronate and Triamcinolone Acetonide for Hemophilic Arthropathy of the Knee
Ki-Young Yoo, Korea

Hemophilic Arthropathy: The Usefulness of Intra-Articular Oxytetracycline (Synoviorthesis) in the Treatment of Chronic Synovitis in Children
Roberto Bernal-Lagunas, Mexico

How Safe Is Rifampicine Synovectomy for Joint Cartilage?
Andrew Chemis, Russia

Open Synovectomy of the Knee in Adolescent Hemophiliacs: Long-Term Results of a Monocentric Series of 24 Patients
Thierry Odent, France

Embolization of the Middle Genicular Artery in Hemophilic Arthropathy
Fausto Lopez, Mexico

Canadian Occupational Performance Measure (COPM) for Assessing Musculoskeletal Function in Hemophilia: Creating an Individualized Approach for Therapy
Alok Srivastava, India

Knee Revision Surgery in Hemophilic Patients
Nicholas Goddard, United Kingdom

Overview of the International Prophylaxis Study Group (IPSG)
Victor Blanchette, Canada
Hemophilia Joint Health Score
Brian Feldman, Canada and Sharon Funk, USA
Role of MRI for Detection of Early Arthropathy: A Proposed New International MRI Score
Bjorn Lundin, Sweden and Andrea Doria, Canada

Rehabilitation for Hemophilia Patients in China
Lexia Chen, China
The Role of Physiatrist in Haemophilia Care in Indonesia Angela B. Tulaar, Indonesia
The Development of Physical Medicine &Rehabilitation in Armenia
Laura Movisisyan, Armenia
Rehabilitation for Hemophilia Patients in Egypt
Nagwa Nassar, Egypt
The Role of Physiatry in South America
Linamara Battistella, Brazil

How VWD Presents in Men and Women
Rezan Kadir, United Kingdom
VWD & VWD Prophylaxis Network: A New Treatment Concept
Thomas Abshire, USA
QoL for Patients with VWD: Nursing Perspective
Lara Oyesiku, United Kingdom
QoL for Patients with VWD: Patients Perspective
Martyn Cooper , United Kingdom
QoL for Patients with VWD: Psychosocial Perspective
Sylvia von Mackensen, Germany
Reproductive Concerns & VWD
Andra James, USA

PEP (Parents Empowering Parents)
Ed Kuebler, USA
HemophiliArt, Art in Hemophilia
Irene Fuchs, Argentina
ROCK (Reach Out Center for Kids)
Bradley Rayner, South Africa
PEP in the USA
Danna Merritt, USA

Maintaining Hemophilia Care with Limited Resources, 40 years experience
Fereydoun A. Ala, Iran
Developing Models for Care within Given Resources
Alok Srivastava, India
Challenges of Resource Allocation among Hemophilia Patients in a Developed Country
W. Keith Hoots, USA

Father's Perspective
Aris Hashim, Malaysia
Mother's Perspective
Haydee Benoit de Garcia, Dominican Republic
PWH Perspective
Robert Lamberth , Australia
Health Care Provider Perspective
TBA

Carriers of Hemophilia: Philippines Experience
Flerida Hernandez, Philippines
The Value of Workshops for Young Women Lliving with IBDs
Belinda Burnett, New Zealand
Hemophilia: The Woman's Perspective
Isabella Moavero, Italy

Hemophilia and Abilty to Work, Self-Confidence, Finding a Job and a Partner in a Devloping Country
Tahir Zafar, Pakistan
Hemophilia and Abilty to Work, Self-Confidence, Finding a Job and a Partner - Turkish Experience
Melda Alantar, Turkey
Hemophilia and Abilty to Work, Self-Confidence, Finding a Job and a Partner in a Devloped Country
Wolfgang Schramm, Germany

Emergency Preparedness for Hemophilia Care Providers and People with Bleeding Disorders
Gillian Kernaghen, Canada
Protecting the Supply Chain to Hospitals and Patients
Mateus Haun, Canada

Introduction
Angela Forsyth, USA
Consumer Perspective
Stephen Weisser, USA
Physiotherapy perspective
Pamela Narayan, India
Psychosocial perspective
Susan Cutter, USA

Management of VWD in the Peripartum Period: A U.K. Based Survey
Gillian Moore, United Kingdom

The Effect of Self-Infusion and Self-Care on Referring to Hospital in Hemophilic Patients: Shiraz, Iran
Nooshin Beheshtipoor , Iran

Peru Leadership Program: Rising Up and Taking Charge
Ed Kuebler, U.S.A.

Quality of Life in Hemophilia Carriers: Preliminary Results of the ESCHQoL Study
Tedgard Ulf, Sweden

Management of Ischemic Heart Disease in Hemophilic Patients
Antonio Coppola, Italy

Canadian Hemophilia Society: “All About Carriers” Program
Patricia Stewart, Canada

Impact of the Establishment of a HTC at a Government Hospital
Tahira Zafar, Pakistan

Role of GAP in Advancing Hemophilia Care in Jordan
Arafat Awajan, Jordan

The Everyday Life of Elderly Hemophilia Patients - What Impact has Hemophilia?
Sylvia von Mackensen, Germany
Physiotherapy and the Hemophilia "Old Boys"
Ethelwyn Remmers, South Africa
Multidisciplinary Approach of the Elderly Patient
Els Haan, Netherlands

Emerging HTC - Gabarone / USA
Haruna Baba Jabril
Established HTC - Chisinau / Warsaw
Jerzy Windyga
Emerging HOT - Thailand / Australia
Monthon Suwannuraks
Established HOT - Tunisia / Canada
Patricia Stewart

Physical and Psychosocial Development in Adolescence
Martti A Siimes, Sweden
Depression & Mental Health in Childhood & Adolescence
Mirriam Kaufman, Canada
Use of Media to Educate & Engage Healthcare Professionals, Parents & Adolescents with the Challenging Issues & Life Stages of Adolescence
Upfront Theatre Group

Effective Working with the Media
Brian O'Mahony, Ireland
The Role of the Media in Latin America
Cesar Garrido, Venezuela
The Role of the Media in EasternEurope
Maxim Golitsin, Belarus

Solvent-Detergent Treatment of Mini-Pool Cryoprecipitate at Local Blood Centres
Magdy El-Ekiaby, Egypt
The Prospects for Longer-Lasting and Less Immunogenic Factor VIII & IX Concentrates
Paul Giangrande, United Kingdom
The Prospects for Gene Therapy in the Treatment of Bleeding Disorders
David Lillicrap, Canada

Psychosocial Support
Flerida Hernandez, Philippines
Physiotherapy
Sailendu Bikash Mazumder, Bangladesh
Youth Leadership Development
Haydee Benoit de Garcia, Dominican Republic
Patient Education
Maria Satti, Sudan

AIDS, Hepatitis & Hemophilia: Memoirs from an Insider
Pier Mannucci, Italy
Co-infection Issues Around NMO, Governments and Patients
Carlos Safadi, Argentina
HIV from the Family Perspective
Kathy and Stephanie Gerus, USA

Psychosocial Assessment and Need-Based Intervention Program for Persons with Hemophilia at the Hemophilia Society of Calcutta
Apurba Mitra, India

Self-Reported Health and Mortality in Patients with Hemophilia
Iris Plug, The Netherlands

Management of Gynecologic Problems in Women with Inherited Hemostatic Disorders
Anis Fadhlaoui, Tunisia

Hemophilia Care in China: A Decade of WFH Treatment Centre Twinning Activities
Man-Chiu Poon, Canada

Hemophilia Care in Guam
Judith Baker, USA

Menarche and Juvenile Menorrhagia in Girls with Inherited Bleeding Disorders
Denisa Jankovicova, Spain

Launch of a Toll-Free Telephone Line
Theresa Almonte, Canada

Depresssion in Children with Severe Hemophilia
Gaby Golan, Israel

Pain Management in PWH
Donatella Subacchi, Italy

Quality of Life and Treatment Satisfaction of Inhibitor Patients – An Italian Experience
Sylvia von Mackensen, Germany
Quality of Life in Haemophilia Patients with Inhibitors – A Spanish Experience
Ana Torres, Spain
Experience and Problems of Inhibitor Patients – A Russian Experience
Nadazhda Zozulkya , Russia
Case Study of Inhibitor Patients in Egypt – A Egyptian Experience
Azza Abdel-Gawad Tantawy, Egypt

Remodelling of Indoors
Emre Kavut and Atilla Sogut, Turkey
Remodelling of Outdoors
Aylin Ciftci, Turkey

Why Not Me?: The Difficulties with Living without Hemophilia
Silvia Grases, Spain
Siblings Interactions in Families with Hemophilia
Gina Goldstein, Israel
Finding a Way to Help
Robert Lamberth, Australia
A Mother's Experience
Maria Robert, Argentina

Prevention and Early Intervention for Arthropathy - PT Style
Kathy Mulder, Canada

Issues around the Elbow - Surgical Option and Limitations
Mauricio Silva, USA

Issues around the Knee - Surgical Option and Limitations
Adolfo Llinás, Colombia

Conservative Management and Post-op Management
Angela Forsyth, USA

Panelists: Jorge Daruich, Argentina and Uri Martinowitz, Israel (TBC)